One in a Million

Nur Airis Natasha (Airis) is born with Tricho-hepato-enteric syndrome (THES), a rare condition with an estimated commonness of 1 in 1,000,000 births. To this date, there are only 44 recorded cases in medical literature worldwide. THES affects the hair (tricho-), liver (hepato-), and intestines (enteric), as well as other tissues and organs in the body.

At the time of mint, Airis has not left the hospital since birth and has gone through countless heartbreaking medical procedures in order to determine her condition. After 7 months, she has been identified with congenital bowel disorder, chronic lung disease, chronic anaemia, and liver disease.

Airis will depend on Total Parenteral Nutrition (TPN) through intravenous feeding and Continuous Positive Airway Pressure (CPAP) to facilitate her breathing throughout life.

This art is an appeal to crowdfund to ease the family’s burden to cover the costs of all the necessary medical equipment to allow her to return home and live her life with her family. The number of editions is set according to Airis’ birth date (21/8/4). All the insertions on her body are replaced with chrysanthemum vines as a symbol of life.

For more information on Airis, you may contact Bahiyudin Othman (father) at +60 16 2257497 or Amirah Mohd. Akhir (mother) at +60 10 2265474.

• Zid (uncle)